Hilary
"I felt a bit of a fraud."

Hilary felt like a fraud going to the doctor for a blood test, and put her symptoms down to age. She reflects on the vast improvement in her quality of life following venesections, and the unexpectedly emotional process of having scans to rule out organ damage caused by genetic haemochromatosis.

Watch Hilary's story


It could have been a different story for me...

I went to the doctor and had a blood test but felt a bit of a fraud. I thought, I’m 43, it’s just life, I’m just getting older.

Then the doctor rang me a few days later, and she said, ‘your iron levels are at 1400, do you have haemochromatosis in the family?’ 

At the start it’s nearly not iron overload, it’s information overload. I didn't know there were different types of GH, or to ask about Transferrin.

It could have been a different story for me. I’ve had my liver scanned and everything’s been fine. I burst out crying when she did the scan; I didn’t realise how emotional it had been. 

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