'I just kept screaming over and over again...'

"I'm a good example of catching it young, starting treatment, and not waiting until it’s taken an irreversible toll on your body."

"Whatever has been affecting me is ten years worse than it should’ve been."

"The next thing I knew, I was diagnosed with diabetes. That was just another thing to add to the list."

"I tend to take most things in my stride."

"It wasn’t until I had the venesections that I realised how unwell I had been."

"My iron was between 300 and 400. It should have been less than 50."

"It’s all a roundabout you just can’t get off..."

"We tested the staff within our organization…I found out that I was the only one out of the staff team that had haemochromatosis!"

"The great thing is to know that my blood can go to use."

"I couldn’t imagine going two or three decades or more not knowing."

"Without a test I’d probably be dead. My wife’s a nurse and she kept pushing for tests."

"After I was diagnosed, my GP told me her husband had haemochromatosis. I’d been back and back to her; how did she not know?"

"My doctor said, ‘we didn’t do this in medical school..'’’

"I can’t get a venesection or give blood. It’s a death sentence."

"An orthopaedic surgeon said, 'I won’t treat you as a private patient, I’m going to transfer you back to my NHS list…'I’ll forever be grateful to that man."

"I felt a bit of a fraud."

"I was sure I would test negative..."

"I thought it was a great idea as a mother and grandmother to get tested."

"You think the doctors will pick it up, but they don’t."

"It took quite a while to get diagnosed..."