Jane got tested, as a mother and grandmother, to know how she and future generations could be affected by the condition. Jayne, alongside her daughter, Leah, who also took part in the project, is a carrier.
My mother had on her death certificate, ischemic heart disease...they didn't test for haemochromatosis...
I wanted to know how GH would impact myself and my family, and future generations.
My sister and I are both in the same practice; one doctor said he would monitor her every 6 months because they’re not sure whether carriers are at no risk. The doctor said to me, ‘you’re just a carrier, it’ll be no problem for you or your children.’
My mother had on her death certificate, ischemic heart disease. It could have all been because they didn’t know; they didn’t test for haemochromatosis.
I now feel pretty clued in about it and the way it can impact your life.