Matt had both knuckles replaced as a result of damage done by genetic haemochromatosis. Matt discusses the difficulty of explaining to others how the condition affects him day-to-day because it is an ‘’invisible’’ illness.
Enjoy your good days, but don’t resent your bad days.
I don’t look sick. But people don’t see me going and getting my blood tested for my kidney function, or my liver.
They don’t see me waiting to see the results.
Because I had worked manually all my life, I had begun to notice that my hands were swelling up, in particular, my right hand. My GP had sent me to a specialist clinic where part of the growth of my hand was removed and a biopsy revealed nothing.
I decided to go privately to a rheumatologist who sent me to an orthopedic surgeon. He could see that the joint had completely worn away.
He said, ‘I will replace both knuckles, but I won’t treat you as a private patient, I’m going to transfer you back to my NHS list.’ When I asked him why, he said words to me that I’ll never forget, ‘it wouldn’t be fair otherwise.’
He carried the surgery out on me, and I’ll forever be grateful to that man.