After learning that his iron level was 3,500, Seamus was told that he was lucky not to have suffered organ damage as a result of genetic haemochromatosis. He and his wife kept pushing for tests, to which he says he would probably be dead without one. Seamus reflects on the lives and money that would be saved by testing earlier.
With screening, we’d save millions of pounds in treatment and thousands of lives in grief.
In the 1970s, a lot of men died in the Troubles here in Derry. Men were just dropping dead, and my father was one of them. He was 50 years of age.
Then when I hit 50, I started getting all these strange symptoms. I was getting depressed over the simplest of things which wasn’t me. My joints started going; I was hearing all these creaks.
I was getting medications for joint pain and stomach problems, plus antidepressants. I believe that the doctors thought that these were three separate things.
Without a test I’d probably be dead. My wife’s a nurse and she kept pushing for tests.
The doctor said, ‘your iron level is 3,500,’ and the first thing that kept coming into my head was my dad. They were saying to me, you’re very lucky, because a lot of people just like your father would get this in the heart, the liver; cirrhosis, liver cancer, heart failure. My liver was tested, and it was fine.
If we were to test all the children at birth around this area, we’d save millions of pounds in treatment and we’d save thousands of lives in the grief and heartache that I went through.