‍

When I first discovered that I had it, I had to tell my daughter. We were in the car, I couldn’t look at her, because I didn't want to say to her that I could die.

‍

But through donating blood regularly, I got my levels down.  

‍

Then I moved house and was put on a waiting list of 5 years and 5 months to be seen by a consultant to be able to restart treatment.

‍

For 15 years I’ve managed this; I’m at over a hundred and fifty donations. I want to help people, I can help people, but I’m not being allowed to.

‍

Please let us have venesections. I worry about dying from iron overload because I can’t get a venesection or give blood any more. It's a death sentence. 

‍